Editors:Doris Schroeder , Kate Chatfield , Roger Chennells , Hazel Partington , Joshua Kimani , Gillian Thomson , Joyce Adhiambo Odhiambo , Leana Snyders , Collin Louw
Paperback ISBN:2452-0527
eBook ISBN:978-3-031-57896-0
This open-access book discusses vulnerability and the protection-inclusion dilemma of including those who suffer from serious poverty, severe stigma, and structural violence in research. Co-written with representatives from indigenous peoples in South Africa and sex workers in Nairobi, the authors come down firmly on the side of inclusion. In the spirit of leaving no one behind in research, the team experimented with data collection methods that prioritize research participant needs over researcher needs. This involved foregoing the collection of personal data and community researchers being involved in all stages of the research. In the process, the term ‘vulnerability’ was illuminated across significant language barriers as it was defined by indigenous peoples and sex workers themselves. The book describes a potential alternative to exclusion from research that moves away from traditional research methods. By ensuring that the research is led by vulnerable groups for vulnerable groups, it offers an approach that fosters trust and collaboration with benefits for the community researchers, the wider community as well as research academics.
Vulnerable populations
Global research ethics
Low and middle-income countries
Non-clinical health research
Research governance
Open Access
Centre for Professional Ethics, University of Central Lancashire, Preston, UK
Doris Schroeder, Kate Chatfield, Hazel Partington
Stellenbosch, Chennells Albertyn Attorneys, Stellenbosch, South Africa
Roger Chennells
Partners for Health and Development in Africa, Nairobi, Kenya
Joshua Kimani, Joyce Adhiambo Odhiambo
University of Central Lancashire, Preston, UK
Gillian Thomson
South African San Council, Upington, South Africa
Leana Snyders, Collin Louw
Book Title
Vulnerability Revisited
Book Subtitle
Leaving No One Behind in Research
Authors
Doris Schroeder, Kate Chatfield, Roger Chennells, Hazel Partington, Joshua Kimani, Gillian Thomson, … Collin Louw
Show authors
Series Title
SpringerBriefs in Research and Innovation Governance
DOI
https://doi.org/10.1007/978-3-031-57896-0
eBook Packages
Religion and Philosophy, Philosophy and Religion (R0)
Copyright Information
The Editor(s) (if applicable) and The Author(s) 2024
Softcover ISBN
978-3-031-57895-3
Published: 01 May 2024
eBook ISBN
978-3-031-57896-0
Published: 30 April 2024
Series ISSN
2452-0519
Series E-ISSN
2452-0527
Edition Number
1
Number of Pages
XIX, 145
Number of Illustrations
6 b/w illustrations, 12 illustrations in colour
Topics
Research Ethics, Nursing Ethics, Sustainable Development, Health Care Management
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